SAVING LENI BOOK

Saving Leni is a beautifully crafted charity book created to share Leni’s story, raise awareness of Sanfilippo Syndrome and help support the search for treatment.

Written by Paula Robertson and illustrated by Laila Clark, the story has been thoughtfully layered to create something children and adults can connect with, while opening up conversations and raising awareness of Sanfilippo Syndrome, a rare condition sometimes described as a form of childhood dementia.

Leni’s family are raising funds towards potential treatment, and all profits from the book go towards supporting treatment for Leni and other children with Sanfilippo Syndrome.

Each copy of Saving Leni comes beautifully presented with a choice of pink or blue bag and a bookmark, making it a particularly lovely gift while supporting an incredibly important cause.

By buying a copy of Saving Leni, you become another very special link in Leni’s journey and help this important story reach a little further.

Details:

• Charity book sharing Leni’s story
• Written by Paula Robertson
• Illustrated by Laila Clark
• Raises awareness of Sanfilippo Syndrome
• Created for both children and adults to connect with
• All profits go towards potential treatment for Leni and other children with Sanfilippo Syndrome
• Includes a bookmark
• Comes with a choice of pink or blue bag
• Launched 31 August 2026
• Created with the support of Leni’s parents, Emily and Gus, and Creative Consultant Danny Lyle